A mobile application virtually connecting Hemophilia patients to their care team

Hemophilia Connect is a tool that allows people with Hemophilia A and their physicians to monitor symptoms and health over time using a smartphone, with the ultimate goal of improving the lives of people with Hemophilia A.

Our recall period is generally limited to a few days, limiting the information that is provided to a Hemophilia-treating physician during clinic visits. The more your physician understands what you're passing through in between clinic visits, the more they can inform a more personalized treatment plan that fits your needs and eventually improves your quality of life.

Using Hemophilia Connect, you will be able to self-record and more frequently report to your physician your bleeds, pain episodes, treatment adherence, and physical activity. You will have weekly and monthly dashboards that are shared with your physician to monitor progress. You will be able to participate in polls with the Hemophilia Community that touches on the quality of life aspect. Also, you will have access to Hemophilia-related learning resources in a form of visually attractive bite-sized learnings; while, children will be able to learn about Hemophilia through playing a game.

Hemophilia Connect puts you in control to improve care.

Hemophilia Connect is an online platform and community designed to empower individuals and families affected by hemophilia and other bleeding disorders. It offers a comprehensive range of resources, support, and connection opportunities, serving as a vital lifeline for those navigating the challenges of these conditions.

Comprehensive Information and Education

Hemophilia Connect provides access to up-to-date and reliable information on hemophilia, its types, symptoms, treatment options, and management strategies. It also offers educational resources for patients, families, and healthcare professionals, covering topics such as disease understanding, treatment advances, and lifestyle management.

Personalized Treatment Support

The platform features a secure messaging system that allows patients to connect with a dedicated team of nurses and social workers. These experts provide personalized support, guidance, and assistance with treatment planning, medication management, and navigating insurance and financial concerns.

Community Connection and Empowerment

Hemophilia Connect fosters a vibrant online community where individuals and families can connect with others who understand their experiences. Discussion forums, support groups, and virtual events offer opportunities for sharing stories, exchanging tips, and finding emotional support.

Advocacy and Awareness

The platform serves as a powerful advocacy tool, raising awareness about hemophilia and the needs of those affected. It engages with policymakers, researchers, and the general public to promote understanding, support, and access to essential care and resources.

Innovative Technology and Accessibility

Hemophilia Connect utilizes state-of-the-art technology to enhance accessibility and user experience. Its mobile app provides convenient access to resources and support on the go. The platform is also designed to be inclusive, with features such as language translation and accessibility tools for individuals with disabilities.

Collaboration and Partnerships

Hemophilia Connect collaborates with leading hemophilia organizations, patient advocacy groups, and healthcare institutions worldwide. These partnerships ensure the platform provides the most current information, evidence-based support, and connections to specialized resources.

A Trusted Resource for Hemophilia Care

Hemophilia Connect has established itself as a trusted and invaluable resource for individuals and families living with hemophilia. It empowers patients to take an active role in their care, provides essential support and guidance, and connects them to a community of understanding and empathy. Through its comprehensive offerings, Hemophilia Connect plays a vital role in improving the lives of those affected by bleeding disorders.